MyGeneDNA
MyGeneDNA is a centralized Database of individuals with Retinal Dystrophies.
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What does this mean for me?
World-wide we have significant clinical trials running for Retinal Dystrophies - Retinitis Pigmentosa, Usher Syndrome, Stargardt's Macular Dystrophy, Choroideremia, Retinoschisis.
Being a rare disease, clinical trials typically run for 5 or more patients.
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This means if there are similar individuals affected by the same mutation, condition - the chances of access to the clinical trials are higher.
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How do I benefit from this?
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When Gene Therapy , Stem Cell Clinical Trials reach us, we will be able to inform you
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In case, you do not know your mutation, we can plan your genetic testing in collaboration
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What do I need to do?
Just fill out the form
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"BE A PART OF THE CHANGE - WE WILL MAKE THIS HAPPEN"
- SPECIALLY ABLED INDIVIDUALS -
The MyGeneDNA is created by the Eye Genetics Foundation to allow patients with inherited retinal diseases, doctors, and the research community to actively work together to promote research and development in the field.
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The strong-hold of getting to know if you are eligible for therapy - is to connect with other, and know what mutation you have.
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The MyGeneDNA form helps you to upload your known mutation, or request for getting your genetic testing done in collaboration
Retinal Dystrophies
List of Ongoing Clinical Trials in:
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Gene Therapy & Stem Cell Therapy
Source: Foundation Fighting Blindness
Updated March 2021